| Название | : | This Young Man Is One Of Two People In The World Coping With A Rare, Nameless Disease | NBC News |
| Продолжительность | : | 9.42 |
| Дата публикации | : | |
| Просмотров | : | 7,4 jt |
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Poor guy Rest in peace, Mitchell Comment from : @nightmare348 |
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His disease is rare but it feels like he didn’t suffer too much Comment from : @cerovk6000 |
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What if he did keto or carnivore? Im asking respectfully It would be interesting Comment from : @naturalrealm7850 |
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i just randomly clicked this video the sweatshirt he is wearing is the college i go to now Comment from : @omg-kb8oc |
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Y’all ruined this kid with all your pharmaceutical poison pills Y’all killed that innocent boy Comment from : @SOULREBEL999 |
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Hi, my name is GregbrThe muscles in my legs, wrist and hands atrophied in the Summer of 1976, when I was twelve (I'm now 59)brOver the next 47 year Drs ruled out the following: MS, MD, Duchene, Kennedy's, CMT, HSP, FSP, and Silvers There were probably more, but I can't remember thembrI was first seen, for a week of testing, by Dr Jerry Mendell in Columbus, Ohio This was in the summer of 1980 In the summer of 1984, I spent a week at the Mayo Clinic in Rochester, MinnesotabrFor the past 20 years, I have seen Dr John Fink at the University of Michigan I see Doc every 12-18 months This past year Dr Fink again brought up the option of having gene sequencing done This time we followed through and in December of 2022, we received the diagnosis of SORD Deficiency It was nice to see the description of SORD's presentation Finally, a disorder which nailed my personal experience Comment from : @gregjames9875 |
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Because there isn't a god Comment from : @whiteroseequestrian1927 |
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My uncle, late father, late great grandfather and on into the distant past have or have had a rare form of retinitis pigmentosa In 2018, my sons and I went through intensive exams and genetic testing for the first time Turns out that we have a never before seen mutation causing our particular type of RP So of the 1/3750 people with RP, only between 6 and 22 will XLRP, the rarest and most severe form The number of people known to have our particular mutation? Four for sure, my uncle, my son, my sister and I (we are carriers) Potentially her two daughters and my one girl Comment from : @wendywalnut1657 |
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RIP🙏🏾🙏🏾🙏🏾🙏🏾 Comment from : @d0nkeymari0y0shi5 |
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This is really sad CRISPR might one day provide a cure for such diseases Comment from : @marymccluer1630 |
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anyone know what happened to the other south korean girl with the disease? can't find anything abt her online Comment from : @senarmstrongfanaccount |
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It's awful living with a rare disease, I have a few and specialists are great but PCPs & doctors at emergency rooms are are extremely clueless and don't believe anything you tell them I get mocked and laughed at by the medical community and it's disgusting! Comment from : @notanotherfuckingnikki |
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Rest In Love, Mitchell Comment from : @darbelsss |
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Mitchell seemed like such a nice young man So sorry he had to deal with this 😢 very unfair Comment from : @raybanz8218 |
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I add unhelpfully that probably other people have this condition but have been misdiagnosed or not diagnosed with anything… nonetheless this really sucks Comment from : @stillhere1425 |
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A great young man who will undoubtedly be used mightily by God ❤️🙏👣 Comment from : @christinacyr |
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Its not an unnamed disease and even if it was, its similar or close to an already described disease that a provisional label can be made nonsense to say he had an unnamed disease, because now we have no way of reading up on this guy or his disease it resembled something Comment from : @JackJackKcajify |
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Mitchell seemed like such a brave, sincere, vibrant soul and his family is beautiful inside and out I'm glad his suffering and his tragic passing weren't in vain Comment from : @elsagreen1476 |
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It isn't god (he doesn't exist) it's an uncaring physical universe Comment from : @IntelligentProbe |
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💔💔💔why Comment from : @gisellebeas2384 |
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i have an rare disease i cant feel a thing or get tiredwht is it? Comment from : @glaremzerp2420 |
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To answer the mothers question, god isnt real Comment from : @ocean34560 |
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Heeeeeeeee will find an amazing wife someday!! Im sure of it!! <3 Comment from : @feyrune3205 |
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RIP Mitchell Comment from : @MsRoseCatcher |
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That does look hard Especially since you used to be a normal kid I really appreciate that you shared your story and were so vulnerable Even though you probably aren’t sharing everything, you help me put my problems in perspective, so I wanna say thank youbrbrRooting for you my friend 💪 Comment from : @frosch455 |
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Travel well King Comment from : @michaelkamau8421 |
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I'll be honest the only thing I could think of is that it might be a prion disease this sounds like a complete and utter breakdown of all of his bodily functions and the fact it spread to his brain and killed him makes me think so but who knows terrible that someone so young was just taken like that Comment from : @overhauledunderpaid6469 |
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God bless this young man! God is great! Comment from : @airman329 |
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8:39 He never got the chance to find that special someone, who'd raise a family with him Comment from : @grill_lv |
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What a good young man, god bless his soul, may he rest peacefully Comment from : @flynndemunck3265 |
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Rest easy Mitchell God bless your family Comment from : @casillasangel |
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What a bummer Comment from : @schplengie1 |
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I will pray for him and the other person… Comment from : @victoriasalter1701 |
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Imagine still believing in God bruh 6:36 just sad Comment from : @_timelike |
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I LOVE this young man’s honesty A legacy well written, Mitchell Rest well… Comment from : @timprescott4634 |
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Om Shanti to Mitchell May god bless your family 🙏 Comment from : @lionemessithegoat |
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Somewhat like Alzheimed but to all body cells Comment from : @elietedarce1266 |
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So he got ligma? Comment from : @johnnyyespapa1368 |
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You will always be amazing Mitchell Thank you NBC for highlighting this young man’s journey May your effort continue to drive more research and treatments for many who will endure similar challenges to Mitchell’s syndrome His courage will always live on Comment from : @JaxNoodle |
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His smile at 5:04 is brilliant His whole family seems profoundly wonderful Rest in peace young man Comment from : @FarocheCouture |
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God bless your family and your child Comment from : @sungjin2204 |
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Humans still have so much to learn Comment from : @jermainemyrn19 |
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He definitely shouldn’t be having biological children with this condition! Does he want them to inherit it? What is he thinking?! Comment from : @notjustanotherguy739 |
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If I was his parents the next thing would be after seeing tons of doctors is to pretend maybe he is allergic to modern societybrPrepare all foods as if it is the 1700's Clean and well cooked healthy meals ZERO junk foods Yes! Eating as if he was Amish and do this for just 5 months to see if anything changesbrYes no sugars at all and no processed foods like hotdogs or twinkies Comment from : @inachu |
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Id take it on myself if I could He's so young Id lend him what vitality I have left Comment from : @FaydraGirl |
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what's it called? Comment from : @Mhykoh |
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My heart goes to Mitchell’s family, rest in peace Comment from : @Terramorph_2784 |
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Y yt suggesting this in 2024 Comment from : @ezzzzgggy11 |
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My son had a nameless disease until the year he passed away Genetics take time to unravel unfortunately Mitchell was very brave to the end God bless you and your family Comment from : @Faith_George |
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God bless this young man❤ Comment from : @robertaprice6263 |
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This is crazy I’m not sure what’s worse this or cancer At least with cancer you know what it is and you start fighting a battle as hard as it might bebrThis guy is a hero to me Smiling, laughing, joking and planning his future in the face of imminent death RIP Mitchell Comment from : @danielt4396 |
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❤️❤️❤️❤️ Comment from : @parinikasharma317 |
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cuz all gods are made up by humans bruh Comment from : @icanflybetch |
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March 21, 2000 - October 2, 2019brbrRest In Peace, Mitchell Herndon Comment from : @Brey |
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If you haven't watch already, I recommend bLorenzo's Oil/b A movie about the parents of Lorenzo who was suffering from another similar rare disease, not this much rare though Comment from : @hakanevin8545 |
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so just leg paralysys Comment from : @its_lucky252 |
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Definitely in my prayers MItchell, as well as your family Also you look so much like Jimmy Donaldson in the face it's wild! Comment from : @honestabe_9207 |
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RIP Comment from : @TheNoticer83 |
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Even before reading the description, it was kind of disappointing to hear him talk about plans for the future It's nice that he still had it in him to have those hopes, but when it started in his legs and was already affecting his ability to swallow, I knew it wouldn't be long I feel like he should have been made more aware Comment from : @TheDoc73 |
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At 6:38 she was SO CLOSE to realizing that there is no god, but good ol’ Christian brainwashing reeled her right back in at 6:55 Only religion can make a person look at another human being in absolute suffering and torment and say “well I’m sure god did this for a reason” Comment from : @BuckScrotumn |
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A gene or cell mutation is not a disease Thats like saying having green eyes is a disease Comment from : @user-xw4hn7lb3x |
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nameless king reference frrrr Comment from : @theb5904 |
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The disease is now called the Michell syndrome, not to be confused with the other disease called Mitchell’s disease, and his body is still being used for research into this disease Comment from : @Trabsol |
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12,000th comment Comment from : @miss_anonymous |
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What is his disease The video is too boring for me to watch to the end Comment from : @Q-hv2cb |
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I wonder if the doctors ever thought of CRISPR Cas 9 gene therapy? Comment from : @trepals |
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Starts off a bit like the boy in Lorenzos Oil did Comment from : @susanyoung6632 |
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May he rest in peace Comment from : @Engelhafen |
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As someone who has dealt with cerebral palsy for my whole life of 25 years I can understand how disabilities can be, fortunately I am not wheelchair bound but things are at least twice as hard for me to do than the average person My heart goes out to the family 😢 Comment from : @nathanielaranda8407 |
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😢🙏❤ Comment from : @PrettybuoyJones1992 |
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BLESS his heart 😢 Comment from : @GREENEYEDALLYCAT |
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Congratulations on being one of four people with a disease nobody especially me cares about Comment from : @georgeedward1691 |
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the tatoo on his arm : Mark 2:5 : "When Jesus saw their faith, he said to the paralyzed man, “Son, your sins are forgiven” "brvery beautiful Comment from : @coolbill9301 |
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RADHARANI BLESS MITCHELL AND HIS LOVED ONES 🙏❤ Comment from : @user-zd7nw3yr3o |
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RIP Mitchell !!! Comment from : @roby_mrg8995 |
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It's just like the memebrDoctor: You have been diagnosed with an extremely rare diseasebrPatient: What is it called?brDoctor: What do you want it to be called? Comment from : @DeJay7 |
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He may have lived a short life, but you know he was an absolute delight and blessing to be around and care for the entirety of his life I am so sorry for his parents, family, and friends, but glad that they had time with him Comment from : @Rafviel |
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call doctor house Comment from : @vitruviusbenson4045 |
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bro just stop coping Comment from : @sackryat |
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There really are rare undxed diseases and more than 2 people have them N BC should consider changing the title because so many live without knowing and even with knowing the care might just be palliative only 😊 Comment from : @jenjenf1996 |
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I briefly felt like him after my breakup Comment from : @amandeepbathla |
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God is a joke People believe in it because they need hope but sorry Fairy land is not real Comment from : @themi4155 |
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god darnit Comment from : @Ell0_sTadium66 |
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“ The undiagnosed diseases networks “ that’s sounds like a superhero association to me 😌 Comment from : @vaj |
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It’s awesome to see how like normal or kinda almost cheery he was throughout the video describing his disease and journey He was a very strong guy inside and out Comment from : @kennynakawaki |
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For the love of god name the disease ligma Comment from : @kaithomasisthegoat8530 |
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He seemed like a sweet guy RIP I hope the girl who’s suffering from this is okay Comment from : @FearlessP4P1 |
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Awwww What a sweet and polite young man he was Comment from : @NancyPinksen |
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I'm so sorry for your loss I'm wonderingwas this young man treated with an extremely high fat diet? Or at high fat carnivore diet? I'm not being facetious Comment from : @holistichealth |
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ligma chance missed right here!!! Comment from : @Marouane0 |
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6:40 because God does not exist lol Comment from : @historicalperspective |
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Rest In Peace Brother🙏 Comment from : @BigBoyTed |
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RIP, Brother Comment from : @CellarDoorx06 |
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